Autism is like a magnifying glass on your life …

If you have a child with autism, you’re probably already aware of this concept whether you know it or not.  Autism magnifies your problems.  If you have money problems, most can expect them to get worse.  If you have problems in your marriage, they will be harder to ignore.  If you have addictions, you’ll be more tempted to feed them.

Autism will accelerate and bring to light your true habits.  A “normal” family can continue down the same old path in blissful ignorance.  Autopilot is not an option here.  You must take action to out grow and/or solve your unresolved issues.  Your child is depending on it.

While your problems are magnified, so too are your opportunities and your motivation.  Resolve to improve all areas of your life and your child will benefit.  Don’t wallow in the crap of autism.  You can feel sad, you can feel down, you can feel any old way you want, but it is your ACTIONS that count the most in this situation.

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The Vaccine War Propaganda

PBS promised a documentary on “The Vaccine War”, but only served up one sided propaganda. The following is from Dr. Jay Gordon.

Shame on PBS Frontline, ” The Vaccine War”

Last night, PBS aired a show called “The Vaccine War.” I was interviewed at great length and in great depth about vaccines and my point of view and expressed my ambivalence about the polarization of this issue and the need for more calm reasoned discussion about the number one question that new parents have. I told Kate McMahon, the co-producer of the show, that there was a large group of doctors and others who cannot be dismissed with the facile label “anti-vaccine” because we still give vaccines and see a place for them in the practice of medicine, but we do not agree with the current vaccine schedule nor the number of vaccines children receive all at one time.

A few days ago, Ms.McMahon emailed me to tell me that the decision had been made to omit my interview from the show. There would not be one word from me. She didn’t tell me that she had also omitted 100% of Dr. Robert Sears’ interview. And that any other comments from physicians supporting the parents on the show in their ambivalence about vaccines or their decision to refuse all vaccines would also be omitted.

She left this as a show with many doctors commenting very negatively, very frighteningly and often disdainfully and dismissively about vaccine “hesitation” as they called it.

Below is my email response to Kate McMahon.

Dear Kate,

The “Frontline” show was disgraceful. You didn’t even have the courtesy to put my interview or any part of the two hours we spent taping on your web site.

You created a pseudo-documentary with a preconceived set of conclusions: “Irresponsible moms against science” was an easy takeaway from the show.

Did you happen to notice that Vanessa, the child critically ill with pertussis, was not intubated nor on a respirator in the ER? She had nasal “prongs” delivering oxygen. I’m sorry for her parents’ anxiety and very happy that she was cured of pertussis. But to use anecdotal reports like this as science is irresponsible and merely served the needs of the doctor you wanted to feature.

No one pursued Dr. Offit’s response about becoming rich from the vaccine he invented. He was allowed to slide right by that question without any follow up. Dr. Paul Offit did not go into vaccine research to get rich. He is a scientist motivated by his desire to help children. But his profiting tens of millions of dollars from the creation of this vaccine and the pursuit of sales of this and other vaccines is definitely not what he says it is. His many millions “don’t matter” he says. And you let it go.

Jenny McCarthy resumed being a “former Playboy” person and was not acknowledged as a successful author, actress and mother exploring every possible avenue to treating her own son and the children of tens of thousands of other families.

I trusted you by giving you two or three hours of my time for an interview and multiple background discussions. I expressed my heartfelt reservations about both vaccines and the polarizing of this issue into “pro-vaccine” and “anti-vaccine” camps. I told you that there was at least a third “camp.” There are many doctors and even more parents who would like a more judicious approach to immunization. Give vaccines later, slower and with an individualized approach as we do in every other area of medicine.

What did you create instead?

“The Vaccine War.”

A war. Not a discussion or a disagreement over facts and opinions, but a war. This show was unintelligent, dangerous and completely lacking in the balance that you promised me–and your viewers–when you produced and advertised this piece of biased unscientific journalism. “Tabloid journalism” I believe is the epithet often used. Even a good tabloid journalist could see through the screed you’ve presented.

You interviewed me, you spent hours with Dr. Robert Sears of the deservedly-illustrious Sears family and you spoke to other doctors who support parents in their desire to find out what went wrong and why it’s going wrong and what we might do to prevent this true epidemic.

Not a measles epidemic, not whooping cough. Autism. An epidemic caused by environmental triggers acting on genetic predisposition. The science is there and the evidence of harm is there. Proof will come over the next decade. The National Children’s Study will, perhaps by accident, become a prospective look at many children with and without vaccines. But we don’t have time to wait for the results of this twenty-one year research study: We know that certain pesticides cause cancer and we know that flame retardants in children’s pajamas are dangerous. We are cleaning up our air and water slowly and parents know which paint to buy and which to leave on the shelves when they paint their babies’ bedrooms.

The information parents and doctors don’t have is contained in the huge question mark about the number of vaccines, the way we vaccinate and the dramatic increase in autism, ADD/ADHD, childhood depression and more. We pretend to have proof of harm or proof of no harm when what we really have is a large series of very important unanswered questions.

In case you were wondering, as I practice pediatrics every day of my career, I base nothing I do on Dr. Wakefield’s research or on Jenny McCarthy’s opinions. I respect what they both have done and respectfully disagree with them at times. I don’t think that Dr. Wakefield’s study proved anything except that we need to look harder at his hypothesis. I don’t think that Jenny McCarthy has all the answers to treating or preventing autism, but there are tens of thousands of parents who have long needed her strong high-profile voice to draw attention to their families’ needs: Most families with autism get inadequate reimbursement for their huge annual expenses and very little respect from the insurance industry, the government or the medical community. Jenny has demanded that a brighter light be shone on their circumstances, their frustration and their needs.

I base everything I do on my reading of CDC and World Health Organization statistics about disease incidence in the United States and elsewhere. I base everything I do on having spent the past thirty years in pediatric practice watching tens of thousands of children get vaccines, not get vaccines and the differences I see.

Vaccines change children.

Most experts would argue that the changes are unequivocally good. My experience and three decades of observation and study tell me otherwise. Vaccines are neither all good–as this biased, miserable PBS treacle would have you believe–nor all bad as the strident anti-vaccine camp argues.

You say the decisions to edit 100% of my interview from your show (and omit my comments from your website) “were purely based on what’s best for the show, not personal or political, and the others who didn’t make it came from both sides of the vaccine debate.” You are not telling the truth. You had a point to prove and removed material from your show which made the narrative balanced. “Distraught, confused moms against important, well-spoken calm doctors” was your narrative with a deep sure voice to, literally, narrate the entire artifice.

You should be ashamed of yourself, Kate. You knew what you put on the air was slanted and you cheated the viewers out of an opportunity for education and information. You cheated me out of hours of time, betrayed my trust and then you wasted an hour of PBS airtime. Shame on you.

The way vaccines are manufactured and administered right now in 2010 makes vaccines and their ingredients part of the group of toxins which have led to a huge increase in childhood diseases including autism. Your show made parents’ decisions harder and did nothing except regurgitate old news.

Parents and children deserve far better from PBS.

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GPS Locator for your child with autism?

From the AUTISM AMBER ALERTS blog ….

nu·m8 (pronounced new-mate) is the world’s first and smallest GPS locator device specifically designed with children in mind. nu·m8 is a watch that conceals GSM and GPS modules that enable you to locate your child, whenever you feel you need to know, via the internet or through your mobile phone (SMS/Text).

Give Your Kids Freedom… and You Peace of Mind

nu·m8 is the first GPS locator that actually locates your child not just the device through a unique and patented mechanism. Unlike other devices, nu·m8 can not be forgotten in a bag, lunchbox or jacket. Should the nu·m8 watch be removed unexpectedly, you will receive an email and / or SMS alert.

When you register your nu·m8, you indicate the mobile number and email address that it will respond to. Once nu·m8 is on your child’s wrist and activated, you can locate them anytime in two ways: 1) Using the customer portal at Lok8u.com and view their current location on a map, OR 2) Receive their location via text message using your mobile phone.

You can also set pre-determined “Safe Zones” for your child to play in. Should they move out of this area you will receive an alert to inform you this has happened. nu·m8 utilizes GPS and GSM technology to locate your child indoors, outdoors, in the US as well as globally.

nu·m8 requires a monthly subscription to the Lok8u pinpoint services in order to send unlimited location requests–via the web or your mobile phone.

Know Where They Are
Simply connect to the lok8u customer portal from your PC or text message from your mobile phone to locate your child, anytime, anywhere.
Instant Alerts if Removed
If the strap of your child’s nu·m8 is opened without your authority, an immediate alert is sent via SMS and email to warn you this has happened.
Set Your Own Boundaries
The “Safe Zone” feature allows you to easily set your own defined area by time and day. An immediate alert is sent via SMS and email to inform you if your child strays outside this area.


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Win a FREE copy of THE AUTISM BOOK by Dr. Robert W. Sears M.D.

Leave a comment on this post that includes your name and email to enter drawing for this book. The winner will be selected April 2, which is the official release day for the book.  Good luck!

THE AUTISM BOOK

By Robert W. Sears, M.D., FAAP

With clarity and compassion, Dr. Robert Sears guides the reader through the maze of autism, explaining what precautions parents can take to decrease their baby’s risk, how to detect autism at the earliest possible age, and how to proceed once a diagnosis has been made. The book provides parents with a simple and clear understanding of the biomedical treatment approach that Dr. Sears has used successfully with many of his young patients. It lays out a plan for developmental, behavioral, and learning therapies; shows parents how to begin treatments without a doctor’s help; presents information on vaccines and their safe use; and includes an extensive resources section.

More information on this book can be found here.

Reviews from Amazon.com: The Autism Book by Robert Sears

The Autism Book is an important resource for both new and experienced parents of children with autism.” (founder of The Whole Child Center, Oradell, NJ Lawrence D. Rosen, MD, FAAP )

“A gem of a book…In parent-friendly language, Dr. Sears provides a road map for parents of a child with autism. As a neurodevelopmental pediatrician, I know I will be…encouraging every one of my families with a child with an autism spectrum diagnosis to buy this book!” (neurodevelopmental pediatrician and coauthor of The Late Talker Marilyn C. Agin, MD, FAAP )

“An easy-to-read, comprehensive, information-filled resource for parents of children with autism spectrum disorders.” (author of Healing the New Childhood Epidemics: Autism, ADHD, Asthma, and Allergies Kenneth A. Bock, MD )

“Autism has many facets, from behavioral to educational to medical, and parents working for the best possible future for their children need a lot of options. Dr. Sears covers the territory broadly, fairly, clearly, and in very useful detail.” (assistant professor of neurology at Harvard Medical School and pediatric neurologist at Massachusetts General Hospital Martha Herbert, MD, PhD )

“This is a solid, accessible book by a wise pediatrician and teacher and, most important, a doctor who really practices the art of listening to his patients.” (Sidney M. Baker, MD, coauthor of Autism: Effective Biomedical Treatments and cofounder of Defeat Autism Now! )

A clear, concise plan for the treatment of autism. A must read for anyone interested in the care of the child in the autism spectrum.” (author of What Your Doctor May Not Tell You About Children’s Vaccinations Stephanie F. Cave, MD, MS, FAAFP )

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ABA Therapy Covered Under New Health Care Law?

While I have not been a real fan of the new health care reforms in general, but consider me officially bought off and my change of mind paid for if it pays for ABA therapy and solves the pre-existing conditions dilemma, which it does according to the Autism Society. That alone would be a MASSIVE benefit for kids with autism, as well as their parent’s pocketbook.  While maybe not all, this coverage will make the difference in deciding whether a lot of these kids grow up to be productive tax paying citizens themselves or supported by the government.  (I will still have to see it to believe it that the default insurance company position on ABA will be changing from a Default No / Jump thru these 10,000 hoops approach to a Default / Yes / Paid position.)

Any one of the following items could have huge impact on my family and my daughter’s future.

  • Insurers would be prohibited from excluding coverage based on pre-existing conditions;
  • Insurers would be prevented from selectively refusing to renew coverage;
  • A standardized annual out-of-pocket spending limit would be established so that no family would face bankruptcy due to medical expenses;
  • Annual and lifetime benefit caps would be prohibited;
  • Coverage of “behavioral health treatments” such as ABA therapy, would be required.

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How will Health Care Reform impact Autism Spectrum Disorders?

How will Health Care Reform impact Autism Spectrum Disorders?

I really wish I had a clue of how to answer that question.  I’ve heard all of the debating and name calling for a year and still really have no idea of exactly what just happened.

Politics and everything else aside, being able to get insurance without an Autism Spectrum Disorder being considered a Pre-Existing Condition would be great for our families.  In theory, this should mean kids who need it will get insurance.  In theory, it should mean that parents are not stuck at a job for health care.  In theory, losing a job won’t mean automatic financial ruin for so many.

In reality, I suspect it will take some time to digest exactly how these changes impact autism.

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Autism Parents, Don’t Settle for Sleep Deprivation!

I am posting this recommendation for parents who have problems sleeping (NOT YOUR CHILD). We all know that autism also brings sleep deprivation into our homes and this makes everything else we do more difficult. This won’t help with being up with your child at all hours, but it will help if, like me, you can’t sleep from worrying. In any case, I’ve been taking POWER TO SLEEP for about a month and it is INCREDIBLE. I really didn’t think an herbal supplement could help with sleeping to this effect. This beats even pharmaceuticals. Here are the ingredients. From what I’ve read, the Valerian Root Extract is probably the most potent ingredient, but whatever the case, IT WORKS!

Product Description

Attaining restful and sustained sleep is fundamental to health and wellbeing. Irwin Naturals Power to Sleep PM utilizes natural ingredients formulated to gently encourage a state of relaxation, replenish nutrients that help the body cope with stress and improve essential mineral stores. These ingredients work together to help you relax before bed, sleep soundly during the night and wake-up feeling refreshed in the morning. Contains Valerian, an herb traditionally used by warring tribes during negotiation to ensure peaceful communication, combines with other beneficial botanicals to promote a sense of relaxation and calm. Melatonin and GABA are keys to maintaining a normal sleep cycle. Ashwaganda, a botanical traditionally used to help your body cope with stress, along with the minerals calcium and magnesium which help promote a healthy nervous system, work together to help you wake up feeling refreshed.

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The Onion - Autistic Child Ruins Marriage He Was Born To Save

I usually love The Onion, but this article, Autistic Child Ruins Marriage He Was Born To Save, is a) just mean, b) full of sterotypes, and c) not funny.  I’ve HAD BEEN a fan of The Onion for years and it’s sad to see that they are so mean-spirited and not funny.

HOUSTON—With the challenges accompanying his developmental disorder widening the already vast gulf between his parents, autistic child Evan Thomas, 3, continued this week to destroy the failing marriage he was brought into this world to save.

Evan, who through the very act of being born was entrusted with the task of resolving lingering conflicts, soothing deep-seated contempt, and restoring intimacy to Mark and Sharon Thomas’ long-strained relationship, has thus far utterly failed in his assigned duties, sources reported Monday.

“It’s so much work taking care of Evan, and Mark just refuses to help out as much as he should,” said Sharon Thomas, who endured a long, agonizing childbirth to put an end to the couple’s constant bitter arguments. “It’s so frustrating. I don’t get any time to myself because Evan needs attention like 24 hours a day.”

“I never asked for this,” Sharon added

According to sources, Mark Thomas, 32, had always wanted a healthy, happy, completely normal son to provide a quick and easy fix to all of his marital problems. However, rather than allaying their trust issues and instantly making everything all better, Evan has reportedly driven a deeper rift between his parents by prompting fights about who is to blame for his condition.

“The doctors are constantly telling us that it’s not anyone’s fault, but if you’d ever met Sharon’s brothers, you’d know that something’s not quite right on that side of the family,” Mark said. “We probably shouldn’t yell in front of him as much as we do, but he doesn’t really pay much attention and it honestly doesn’t seem to bother him.”

“In fact, nothing seems to bother him,” Mark continued.

Although Evan was only diagnosed with autism six months ago, Mark said it was clear right after bringing him home from the hospital that something was wrong with their son, since their lives did not take a dramatic 180-degree turn for the better, lingering disputes did not just melt away, and years of underlying tension were only brought into sharper focus.

The child, who according to his parents rarely smiles or acts cheerful, has left many in the household concerned that he’s not committed to mending the broken relationship. Moreover, during the past three years, Evan has reportedly done almost nothing to curb Mark’s controlling nature or Sharon’s cruel emotional abuse.

Evan has also failed to utter the words “mama” or “dada,” thereby ruining any chance his parents might have had at forging an instantaneous, all-healing bond.

[MORE ...]

Contact The Onion at …  editorial@theonion.com; newyork@theonion.com; chicago@theonion.com; austin@theonion.com; colorado@theonion.com; milwaukee@theonion.com; madison@theonion.com; minneapolis@theonion.com; dc@theonion.com; davidkschafer@gmail.com; shannah@theonion.com; mcavoy@theonion.com; bwernecke@theonion.com

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TV, Movies and Your Child with Autism

Can cartoons, movies, tv impact your ASD Child?

In general, I’ve never big a big fan of blaming violent movies, TV, or video games, for the acts committed by people who view them regularly.  However, if you have a kid with autism, you might consider taking a look at what exactly your child is watching.  While this is a great idea for all parents, sometimes autism parents might assume that a certain show is OK or think your child is not paying attention to what YOU are watching.  In our case, our daughter is super perceptive even when we think she is focused on something else entirely.  She also seems to tune in to our moods, which can also be a factor considering what you are watching.

You often hear people say that kids with autism do not imitate others.  This is not the case for lots of kids with autism.  Our daughter does lots of imitating of people in real life and stuff from movies. Kids with autism are often very visual thinkers.  Video Modeling is even a therapy used to teach social behaviors to children on the Autism spectrum.  In our case, what might appear to be just general bad behavior could have roots in a movie she saw last night, last week, or last year.  Even movies that are NOT VIOLENT and perfectly fine with neuro-typical kids, can result in unwanted behaviors.  One prime example of a movie banned from ever seeing the light of day in our house is the 1999 Walt Disney movie TARZAN.  For one thing, Tarzan swing from everything under the sun.  There are also lots of OVER ACTIVE MONKEYS being monkeys.  None of these are things you want imitated.

Acting like a monkey in Walmart could perhaps result in some parenting stress even for the best of us.  Yes, that can be a pain, but some acts in what you might consider safe media, could result in serious injury or even death if imitated by your child.

One thing that I assumed was fine was Looney Tunes.  Our daughter loves Bugs Bunny.  She likes to take her Bugs Bunny doll with her lots of times.  He is her most beloved doll.  So much so, that she threw Buggs off of a moving train while we were going over a bridge in a heavily wooded area at the Six Flags amusement park right before we were about to enter BUGGS BUNNY NATIONAL PARK!  Buggs was rescued by a brave Six Flags employee.  Why would she do such a thing?  At first thought, it doesn’t make much logical sense to my brain.  However, have you ever seen all of the things that Looney Tunes characters endure?  Being thrown off of a moving train is actually pretty tame compared to a lot of the things the Buggs Bunny cartoon character gets himself into on screen.

I watched Looney Tunes as a kid and my memory of them really didn’t match up to reality. We are guilty of popping in a movie in the car DVD player, giving her the headphone and letting her watch a movie while we listen to something else.  When I watched some of these classic cartoons with her, I was a tad shocked at some of the subject matter.  The first episode that I watched had a prostitute, a homicide, and a suicide! The next involved about a dozen ways that the Road Runner tortured Wile E. Coyote.  This was followed by Buggs apparently committing suicide while playing a friendly game of russian roulette with Yosemite Sam.

I’m not going to go into the full laundry list of Looney Tunes debauchery here, but will give you a couple of examples that would not be wise to imitate.  Below is Buggs Bunny after he was HANGED by another character.  The second picture shows a character who was just submerged in boiling water because another character thought he resembled a lobster.  The only consequence of these acts in the cartoon world was some mocking by the other characters. Real world imitations of either of these could result in a lot bad things.

Movies, TV, video games, and the Internet can be great tools for your visual learner if you provide the right input.  So, watch what you are introducing to your ASD child’s mind.  The problem behaviors that you are enjoying may be the direct result of some simple cartoon that you assumed was fine.

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Facebook Autism Groups

Facebook is a treasure trove of information and support for families impacted by autism.  Here are just a few Facebook groups.

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