Posted on July 15th, 2009 by admin
We are in the same old Catch 22 with the seizure meds. We removed one of the two anticonvulsants, Topamax; because of the low dose, the fact that we still have seizures occassionally, and the side effects.
Less seizure meds = more verbal and fewer autism-ism symptoms. However, we’ve had 4 seizures in a week. The dilema is do we give it some more time or add the new drug suggested by the doctor; Zonegran. Topamax for sure seems to have some side effects that impact being more verbal.
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Filed under: Autism and Seizures, Epilepsy, Seizures
Posted on April 23rd, 2009 by admin
I sometimes wonder if those who feel that autism is related to vaccines created their own red herring with mercury. If it’s not mercury, does that mean vaccines are automatically off the hook? I have no clue and don’t claim to know, but it does seem like there is a lot of misinformation on all sides by people who are more concerned with being right than investigating the issue.
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Filed under: Autism and Seizures, Epilepsy, Seizures, Vaccines
Posted on January 3rd, 2009 by admin
As a parent of a child with seizures, my heart goes out to John Travolta and family over the death of their son, Jett Travolta. Autism controversy aside, seizure related accidents and death are all too common.
Related:
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Filed under: Autism in the news, Safety, Seizures
Posted on September 11th, 2008 by admin
If you follow autism news and haven’t been under a rock this week, you probably saw this truly amazing story about a father and 12 year old son with autism who survived 14 hours treading water.
It’s mind blowing how fast this seemed to happen. Reports say they were swimming at “night”, but it’s not clear if it was dark.
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Filed under: Safety, Seizures
Posted on July 12th, 2008 by admin
Sweet Caroline: September 11, 2001
I mentioned in the previous post that our experience with seizures started after the 4 month vaccines. That was September 2001, a month that the world changed for a lot of people, including us. The fact that September 11 happened right around this time is something that gives me a great perspective after the fact. At the time, we were as far to the right on the clueless meter as it was possible to be, and unfortunately, I think we stayed there longer than we should have for the simple fact that seizures complicate the whole picture and even the “best” doctors were only marginally less clueless on Autism.
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Filed under: Seizures
