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Autism Mom Becky Estepp: Fox News on Vaccines

Great video of Autism Mom, Becky Estepp, on Fox & Friends discussing vaccines, autism, and the Hannah Polling case.  This was on at 3:35 AM; which is when Fair and Balanced autism coverage is most likely to be aired.

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Living in the present

I recently wrote about the need to find a way to stay positive for yourself and for your child with autism.  I think the main difficulty in achieving this goal consistently for some people is the ups and downs inherent in autism.  You stay positive, things are going good, then BAM something happens to remind you of the realities of autism.  It’s easy to stay positive in the good times.  It’s the bad that require you to dig deep for strength.

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Autism - Not In My Back Yard? (NIMBY)

Some good points on all sides in this discussion.  This will increasingly be an issue as huge number of children with autism become adults with autism.

LaGrange residents question planned home for autistic

LAGRANGEVILLE — Potential future neighbors of a planned group home for autistic adults in the town’s Vista Ridge development questioned the decision to purchase the home at a public information session.

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*&$(@*! Seizures

As if autism itself is not enough, approximately 1/3 of kids with ASD also have seizures.  We are one of the lucky third and I do believe the seizures are harder to deal with than all of the autism issues combined.  You can teach your child how to behave in public.  You can help your child learn alternate ways of communicating.  You cannot teach your child to not have a seizure. Often there is little or no warning for us.  Other times, we can tell from behavior that one is on the way.  This was the case last night.  Often hyperactivity builds in the time leading up to the seizure.

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Autism Scale

I wish there was some accepted and quantifiable scale that we could all use when discussing individuals diagnosed with an autism spectrum disorder.  It is so frustrating to see a kid who bangs his head and spins all day everyday and a higher functioning person with Aspergers, both lumped into AUTISM.  This is the root of many disagreements and feuds over autism that permeate the Internet.  People are not talking Apples and Oranges.

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What will happen when I die?

Great article on Donald T, the first diagnosed case of autism.  The Atlantic: Autism’s First Child

While not the main point of the story, it did include this passage which I think about every day of my life.

The question that haunts every parent of a child with autism is What will happen when I die? This reflects a chronological inevitability: children with autism will grow up to become adults with autism, in most cases ultimately outliving the parents who provided their primary support.

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Wandering off, drowning, divorce, murder, suicide, abuse …

Wandering off, drowning, divorce, murder, suicide, abuse … Some days keeping up with the latest autism news is enough to drive a person to drink. Tweet This Post

Staying Positive

Yes, I love my child.  Yes, she has autism.  Yes, some days SUCK.  Staying positive in the face of adversity seems to be a learned trait.  The ability to do so also seems to come and go.  In my case, it’s been gone of late.  How do you stay positive in the face of such a daunting never-ending 24/7 challenge?  I wish I knew.

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