911 Call from “Mom” who kills her kids with autism …

Deja Vu …

By James Rose | KDFW – FOX 4 – Dallas Forth Worth

IRVING, Texas – The Irving mother who strangled her two children earlier this week told a 911 operator she did so because they were both autistic and she wanted normal children.

Police said 30-year-old Saiqa Akhter strangled 5-year-old Zain and 2-year-old Faraal.

She then called 911.

She can be heard in an audio recording repeating, “I kill my both kids. They are died.”

Akhter also told the operator that she tried to make the children drink bathroom cleaner, but they wouldn’t swallow. So instead she wrapped wire around their necks until “they are no more.”

“I know the policeman come to pick me,” she said.

When the operator asked Akhter why she did it, she explained both her children were autistic.

“Both are autistic. I don’t want my kids to be like that. I want normal kids,” she said. “I don’t want my kids to be autistic. I kill both of them.”

Paramedics who arrived at Akhter’s apartment in the 3300 block of Esters Road Monday evening found the children blue and unconscious in a bedroom .

Zain was pronounced dead at the hospital. His little sister Faraal was taken off life support Wednesday morning.

Akhter now faces capital murder charges.

Source: http://www.myfoxdfw.com/dpp/news/072110-911-call:-mom-didn%E2%80%99t-want-autistic-kids

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Autism Dad, Ernie Els, takes 3rd at U.S. Open

Autism Dad, Ernie Els, had a pretty good showing in the US Open, 3rd place.  Not quite, good enough for a win, but still a great all around performance for a guy who has been out of major contention for so long dealing with AUTISM.

Related:

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Autism Parents 80% Divorce Stat Debunked

Glad to see that someone took the time to actually study this issue.  I tried in vain to find the source of the 80% number and could never find.  It always bugged me that we know divorce statistics on all kinds of other issues (different religion, lived together before marriage, etc), but the one about parents with children who have autism seemed to be pulled from a magic hat.

80 Percent Autism Divorce Rate Debunked in First-Of-Its Kind Scientific Study
Kennedy Krieger researchers find autism does not affect family structure

PHILADELPHIA, PA — Having a child with autism can put stress on the parents’ marriage, and a frequently cited statistic leads to a common perception that the divorce rate among these families is as high as 80 percent. But a study to be released at a news conference today by researchers from Kennedy Krieger Institute in Baltimore found that a child’s autism has no effect on the family structure.

Brian Freedman, PhD, lead author of the study and clinical director of the Center for Autism and Related Disorders at Kennedy Krieger Institute, said the findings seem to debunk a lot of the general understanding about high divorce rates among parents of children with autism. Dr. Freedman and his research team found that 64 percent of children with an autism spectrum disorder (ASD) belong to a family with two married biological or adoptive parents, compared with 65 percent of children who do not have an ASD.

Dr. Freedman will present results of the study in Philadelphia at the International Meeting for Autism Research, an annual scientific meeting convened to exchange new scientific progress among autism researchers from around the world.

Receiving the news of a child’s autism diagnosis can be devastating, and Dr. Freedman said the pain is compounded as parents ponder what will happen to them as a couple. “In the work I’ve done with children with autism, I’ve come across many couples who quote this 80 percent divorce rate to me. They don’t know what the future holds for their child, and feel a sense of hopelessness about the future of their marriage as well — almost like getting a diagnosis of autism and a diagnosis of divorce at the same time,” he said.

With very little empirical and no epidemiological research addressing the issue of separation and divorce among parents of children with autism, researchers sought to more scientifically examine the incidence. Using data from the 2007 National Survey of Children’s Health[1] , they examined a nationally representative sample of 77,911 children, ages 3 to 17.

Previous research speaks to the fact that parenting a child with autism is stressful, and it puts pressure on the marriage. Dr. Freedman noted that past studies have found couples with a child with autism experience more stress in their marriage than couples with typically developing children or couples with children with other types of developmental disabilities, such as Down syndrome. Mothers of children with autism report more depression than those with typically developing children, while fathers report they deal with the stress by distancing themselves and becoming less involved with the family.

“While there are indeed stressors in parenting a child with autism, it doesn’t necessarily result in the family breaking up more often than would occur in another family,” said Dr. Freedman. “And as someone who works with a team of health care professionals to treat and provide support for families of children with autism, it’s important for us to make sure our patients’ parents know that, and for our fellow clinicians to provide reliable, evidence-based information about the divorce rate among this population as well.”

This analysis of the National Survey of Children’s Health data showed there are certain factors in a family that can contribute to divorce, such as having a child with particularly challenging behaviors, with or without autism. For some families, the challenges of parenting a child with special needs may indeed result in straining the marriage to the breaking point. Further research is needed to understand the relationships among in-tact families with children with autism to identify how they work through the challenges.

“I would hope this research drives home the importance of providing support to these families, and letting them know that their relationships can survive these stressors,” he said. “We should continue to provide training for parents so that they can work through the stressors in their relationship to keep their family together and have a successful marriage.”

Dr. Freedman’s presentation will be held on Friday, May 21, 2010 at 1:30 p.m. ET during the Epidemiology 2 Session in the Philadelphia Marriott Downtown, Grand Ballroom CD Level 5 room.

In addition to Freedman, the research team includes Luther Kalb, of Kennedy Krieger Institute; and Ben Zablotsky and Dr. Elizabeth Stuart, of Johns Hopkins Bloomberg School of Public Health.

About Autism
Autism spectrum disorders (ASD) is the nation’s fastest growing developmental disorder, with current incidence rates estimated at 1 in 100 children. This year more children will be diagnosed with autism than AIDS, diabetes and cancer combined, yet profound gaps remain in our understanding of both the causes and cures of the disorder. Continued research and education about developmental disruptions in individuals with ASD is crucial, as early detection and intervention can lead to improved outcomes in individuals with ASD.

About Kennedy Krieger Institute
Internationally recognized for improving the lives of children and adolescents with disorders and injuries of the brain and spinal cord, the Kennedy Krieger Institute in Baltimore, MD serves more than 13,000 individuals each year through inpatient and outpatient clinics, home and community services and school-based programs. Kennedy Krieger provides a wide range of services for children with developmental concerns mild to severe, and is home to a team of investigators who are contributing to the understanding of how disorders develop while pioneering new interventions and earlier diagnosis. For more information on Kennedy Krieger Institute, visit www.kennedykrieger.org.

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Autism Art and Music therapy in Jackson, TN

The STAR Center, in partnership with the Yates Foundation, is pleased to announce TWO new summer programs for children with Autism Spectrum Disorders, led by art and music therapists.

Children will participate in Art therapy and Music therapy, including the Tuned in to Learning® curriculum. For scholarship info, please visit yatesfoundation.org. There are a limited number of spots, so register early!

SUMMER OPTION
[2 Days a week for 4 weeks]
Dates: June 8th through July 1st
Tuesdays and Thursdays
Time: 9:00 am - 12:00pm
Cost: $250* per child

BACK-TO-SCHOOL OPTION
[2 weeks]
Dates: July 19 - 22 and July 26 - 29
Monday - Thursday
Time: 9:00 am - 12:00pm
Cost: $250* per child

*For more information and registration, please contact Janie Giles Carp at (731) 554-5137 or janie.giles.carp@starcenter.tn.org.

http://starcenter.tn.org/arts4autism.html

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Autism Mothers Chosen by God

The following is a modified version of a poem written by Erma Bombeck.  Also, yes, I know God didn’t cause autism in a lot of our kids, but somehow this has a nicer ring than Autism Mothers Chosen by Incompetent, Uncaring, Boneheaded and All Around Clueless Medical Establishment and the Pharmaceutical Industry Complex.

Autism Mothers Chosen By God

Most women become mothers by accident, some by choice, a few by social pressures and a couple by habit.

This year, nearly 500,000 women in the world will become mothers of children with autism.

Did you ever wonder how mothers of these children are chosen?

Somehow, I visualize God hovering over earth selecting His instruments for propagation with great care and deliberation.

As He observes, He instructs His angels to make notes in a giant ledger.

“Armstrong, Beth, son. Patron saint, Matthew.

“Forrest, Marjorie, daughter. Patron saint, Cecelia.

“Rudledge, Carrie, twins. Patron saint… give her Gerard, He’s used to profanity.”

Finally, He passes a name to an angel and smiles, “Give her a child with autism.”

The angel is curious. “Why this one, God? She’s so happy.”

“Exactly,” smiles God. “Could I give an autistic child a mother who does not know laughter? That would be cruel.”

“But has she patience?” asks the angel.

“I don’t want her to have too much patience or she will drown in a sea of self-pity and despair. Once the shock and resentment wears off, she’ll handle it.”

“I watched her today. She has that feeling of self and independence that is so rare and so necessary in a mother. You see, the child I’m going to give her has his own world and that’s not going to be easy.”

“But Lord, I don’t think she even believes in you.”

God smiles. “No matter. I can fix that. This one is perfect. She has just enough selfishness.”

The angel gasps, “Selfishness? Is that a virtue?”

God nods. “If she can’t separate herself from the child occasionally, she’ll never survive. Yes, here is a woman whom I will bless with a child who is less than perfect. She doesn’t realize it yet, but she is to be envied. She will never take for granted a ’spoken word.’ She will never consider a ’step’ ordinary.”

“When her child says ‘Momma, I Love You’ , she will be present at a miracle and know it! When she describes a tree or sunset to her child, she will see it as few people ever see my creations.”

“I will permit her to see clearly the things I see… ignorance, cruelty, prejudice… and allow her to rise above them. She will never be alone. I will be at her side every minute of every day of her life because she is doing my work as surely as she is here by my side.”

“And what about her patron saint” asks the angel, his pen poised in mid-air.

God smiles. “A mirror will suffice.”

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Home is where the autism is …

One of the biggest issues looming on the autism horizon is where will all of these kids with autism live when the grow up to be adults with autism?  As we know, the range of independent living skills is vast amongst these kids / future adults.

We do know that parents of kids with an autism spectrum disorder are a hearty bunch to say the least and I suspect that we will start seeing some very innovative solutions in the coming years.

The following is an article from the Philippines on this issue.

HOME for young people with autism

By DANG U. KOE
HOME  also teaches persons with autism messenger services, delivering food to  neighboring houses.
HOME also teaches persons with autism messenger services, delivering food to neighboring houses.

What will happen to our child (with autism) as he grows older? Where will he live? What will he do?”

Of all the practical issues surrounding the growing adult populations with autism, the need for residential options seems most pressing but least addressed, if at all.

In some countries, like USA, community housing options for adults with autism are available for them to live and thrive in the communities they know. Such residential models include group homes, supportive living, supervised living, farmstead programs, community living options, family teaching model, cooperatives, and shared housing.

These community housing options should not just be sustainable, integrated, accessible, and affordable. Most importantly, they should be real homes that are specifically adapted to support the needs of adults with autism. (source: Foundation for Autism Support and Training (FAST), Maryland, USA).

HERE IN THE PHILIPPINES, WE HAVE HOME …

FULL ARTICLE / SOURCE:  http://www.mb.com.ph/articles/256704/home-young-people-with-autism

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“Bye” - Autism Documentary

Bye (Trailer) from Anthony Morrison on Vimeo.

FOR IMMEDIATE RELEASE

Contact: Gita Chandra (gita@pkpr.com)

Patrick Kowalczyk (patrick@pkpr.com)

PKPR, 212.627.8098

CINEREACH CELEBRATES 2009/2010 REACH FILM FELLOWS

Filmmaker Anthony Morrison receives Reach Out Award for his short film “Bye”;

Cinereach kicks off call for applications for 2010/2011 fellowship

http://www.cinereach.org/the-reach-film-fellowship

(New York, NY) – April 20, 2009 – Cinereach, a New York City based not-for-profit film foundation and production company, gave its latest group of film fellows a festive sendoff last night at a screening and party celebrating the culmination of its 2010 Reach Film Fellowship program for emerging filmmakers.

Reach Out marks the conclusion of an intensive seven-month program during which four fellows - Nadia Hallgren, Courtney Hope, Gabriel Long and Anthony Morrison -  were paired with mentors as they made short films with socially relevant themes. This year’s mentors were: Marilyn Agrelo (Mad Hot Ballroom), Laurie Collyer (SherryBaby), Annie Sundberg (The Devil Came on Horseback), and Jeremy Kipp Walker (Half Nelson).

The fellows also participated in a series of workshops led by 16 advisors, who included Susan Leber (Down to the Bone), Yoni Brook (Bronx Princess), Dan Cogan, (Impact Partners), Esther Robinson (A Walk Into The Sea), Tze Chun (Children of Invention), Todd Griffin (musician and composer), Cara Cusumano (Associate Programmer, Tribeca Film Festival) and several others.

In addition to guidance from mentors, advisors and Cinereach staff, all four fellows received a grant of $5,000 and other production support over the course of the program.

“Our program is designed to focus on the process – to create a space in which our fellows can take risks and learn, said Reva Goldberg, who heads up the Reach Film Fellowship for Cinereach. “We’re so pleased to be sharing the impactful shorts that were produced in the program with the film community and look forward to seeing where the fellows go from here.”

The four 2010 Reach Film Fellows and their films are:

  • Reach Out 2010 Award Recipient Anthony Morrison (Nonfiction) worked with director Marilyn Agrelo (Mad Hot Ballroom) for his film, Bye. The film follows a two-year-old diagnosed with autism, through his first months of school in the Bronx. As the Reach Out Award recipient, Morrison receives a $5,000 grant towards his future work.

  • Nadia Hallgren (Nonfiction) worked with director Annie Sundberg (Devil Came on Horseback) for her documentary film Love Lockdown which tells the story of a young mother from the Bronx as she waits to learn the fate of her incarcerated fiancée, communicating with him via shout-outs on a popular late-night radio show called “Lockdown Love.”
  • Courtney Hope (Fiction) worked with acclaimed indie producer Jeremy Kipp Walker (Half Nelson, Sugar, Cold Souls) for her film, Wild Birds. The film tells the story of two sisters who have run away from an abusive home.

  • Gabriel Long (Fiction) worked with director Laurie Collyer (Sherrybaby) for his film The Drawing in which a young boy navigates his complex relationship with his older brother as they anxiously await their father’s return from a fishing trip.

Cinereach also announced that it is now seeking applicants for its 2011 Reach Film Fellowship. Young filmmakers who seek to follow in the footsteps of this year’s fellows can now apply at http://www.cinereach.org/the-reach-film-fellowship/how-to-apply.

The fellowship is open to emerging filmmakers who have completed at least one short film. It is ideal for recent film school graduates, or self-taught filmmakers with the equivalent level of production experience. Applicants must reside in the New York Tri-State area from August through April of 2010/2011.  The deadline for submitting applications is Monday, July 12, 2010.

About Cinereach

Cinereach is a not-for-profit film foundation and production company that champions vital stories, artfully told. Created by young philanthropists, entrepreneurs, and filmmakers, Cinereach empowers fiction and nonfiction filmmakers from all over the world through three key initiatives: Grants & Awards, The Reach Film Fellowship and Productions. Cinereach is drawn to films at the intersection of engaging storytelling, visual artistry, and vital subject matter. It has awarded over $3 million to more than 50 feature films. Recent grantee highlights include A Small Act, a documentary by Jennifer Arnold and Patti Lee, which premiered in competition at the 2010 Sundance Film Festival; October Country, a documentary by Michael Palmieri and Donal Mosher, which was nominated for an Independent Spirit Award, a Gotham Award and took home awards from the 2009 SilverDocs Festival and the Cinema Eye Awards. The Reach Film Fellowship is a granting and mentorship program (entering its fourth year) in which Cinereach helps four emerging filmmakers transition from novice to professional as they produce vital socially relevant shorts. Cinereach Productions is currently in development on a feature film project. For more on any of Cinereach’s programs, visit Cinereach.org.

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Vaccine Proponents Conflicts of Interest

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Autism is like a magnifying glass on your life …

If you have a child with autism, you’re probably already aware of this concept whether you know it or not.  Autism magnifies your problems.  If you have money problems, most can expect them to get worse.  If you have problems in your marriage, they will be harder to ignore.  If you have addictions, you’ll be more tempted to feed them.

Autism will accelerate and bring to light your true habits.  A “normal” family can continue down the same old path in blissful ignorance.  Autopilot is not an option here.  You must take action to out grow and/or solve your unresolved issues.  Your child is depending on it.

While your problems are magnified, so too are your opportunities and your motivation.  Resolve to improve all areas of your life and your child will benefit.  Don’t wallow in the crap of autism.  You can feel sad, you can feel down, you can feel any old way you want, but it is your ACTIONS that count the most in this situation.

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The Vaccine War Propaganda

PBS promised a documentary on “The Vaccine War”, but only served up one sided propaganda. The following is from Dr. Jay Gordon.

Shame on PBS Frontline, ” The Vaccine War”

Last night, PBS aired a show called “The Vaccine War.” I was interviewed at great length and in great depth about vaccines and my point of view and expressed my ambivalence about the polarization of this issue and the need for more calm reasoned discussion about the number one question that new parents have. I told Kate McMahon, the co-producer of the show, that there was a large group of doctors and others who cannot be dismissed with the facile label “anti-vaccine” because we still give vaccines and see a place for them in the practice of medicine, but we do not agree with the current vaccine schedule nor the number of vaccines children receive all at one time.

A few days ago, Ms.McMahon emailed me to tell me that the decision had been made to omit my interview from the show. There would not be one word from me. She didn’t tell me that she had also omitted 100% of Dr. Robert Sears’ interview. And that any other comments from physicians supporting the parents on the show in their ambivalence about vaccines or their decision to refuse all vaccines would also be omitted.

She left this as a show with many doctors commenting very negatively, very frighteningly and often disdainfully and dismissively about vaccine “hesitation” as they called it.

Below is my email response to Kate McMahon.

Dear Kate,

The “Frontline” show was disgraceful. You didn’t even have the courtesy to put my interview or any part of the two hours we spent taping on your web site.

You created a pseudo-documentary with a preconceived set of conclusions: “Irresponsible moms against science” was an easy takeaway from the show.

Did you happen to notice that Vanessa, the child critically ill with pertussis, was not intubated nor on a respirator in the ER? She had nasal “prongs” delivering oxygen. I’m sorry for her parents’ anxiety and very happy that she was cured of pertussis. But to use anecdotal reports like this as science is irresponsible and merely served the needs of the doctor you wanted to feature.

No one pursued Dr. Offit’s response about becoming rich from the vaccine he invented. He was allowed to slide right by that question without any follow up. Dr. Paul Offit did not go into vaccine research to get rich. He is a scientist motivated by his desire to help children. But his profiting tens of millions of dollars from the creation of this vaccine and the pursuit of sales of this and other vaccines is definitely not what he says it is. His many millions “don’t matter” he says. And you let it go.

Jenny McCarthy resumed being a “former Playboy” person and was not acknowledged as a successful author, actress and mother exploring every possible avenue to treating her own son and the children of tens of thousands of other families.

I trusted you by giving you two or three hours of my time for an interview and multiple background discussions. I expressed my heartfelt reservations about both vaccines and the polarizing of this issue into “pro-vaccine” and “anti-vaccine” camps. I told you that there was at least a third “camp.” There are many doctors and even more parents who would like a more judicious approach to immunization. Give vaccines later, slower and with an individualized approach as we do in every other area of medicine.

What did you create instead?

“The Vaccine War.”

A war. Not a discussion or a disagreement over facts and opinions, but a war. This show was unintelligent, dangerous and completely lacking in the balance that you promised me–and your viewers–when you produced and advertised this piece of biased unscientific journalism. “Tabloid journalism” I believe is the epithet often used. Even a good tabloid journalist could see through the screed you’ve presented.

You interviewed me, you spent hours with Dr. Robert Sears of the deservedly-illustrious Sears family and you spoke to other doctors who support parents in their desire to find out what went wrong and why it’s going wrong and what we might do to prevent this true epidemic.

Not a measles epidemic, not whooping cough. Autism. An epidemic caused by environmental triggers acting on genetic predisposition. The science is there and the evidence of harm is there. Proof will come over the next decade. The National Children’s Study will, perhaps by accident, become a prospective look at many children with and without vaccines. But we don’t have time to wait for the results of this twenty-one year research study: We know that certain pesticides cause cancer and we know that flame retardants in children’s pajamas are dangerous. We are cleaning up our air and water slowly and parents know which paint to buy and which to leave on the shelves when they paint their babies’ bedrooms.

The information parents and doctors don’t have is contained in the huge question mark about the number of vaccines, the way we vaccinate and the dramatic increase in autism, ADD/ADHD, childhood depression and more. We pretend to have proof of harm or proof of no harm when what we really have is a large series of very important unanswered questions.

In case you were wondering, as I practice pediatrics every day of my career, I base nothing I do on Dr. Wakefield’s research or on Jenny McCarthy’s opinions. I respect what they both have done and respectfully disagree with them at times. I don’t think that Dr. Wakefield’s study proved anything except that we need to look harder at his hypothesis. I don’t think that Jenny McCarthy has all the answers to treating or preventing autism, but there are tens of thousands of parents who have long needed her strong high-profile voice to draw attention to their families’ needs: Most families with autism get inadequate reimbursement for their huge annual expenses and very little respect from the insurance industry, the government or the medical community. Jenny has demanded that a brighter light be shone on their circumstances, their frustration and their needs.

I base everything I do on my reading of CDC and World Health Organization statistics about disease incidence in the United States and elsewhere. I base everything I do on having spent the past thirty years in pediatric practice watching tens of thousands of children get vaccines, not get vaccines and the differences I see.

Vaccines change children.

Most experts would argue that the changes are unequivocally good. My experience and three decades of observation and study tell me otherwise. Vaccines are neither all good–as this biased, miserable PBS treacle would have you believe–nor all bad as the strident anti-vaccine camp argues.

You say the decisions to edit 100% of my interview from your show (and omit my comments from your website) “were purely based on what’s best for the show, not personal or political, and the others who didn’t make it came from both sides of the vaccine debate.” You are not telling the truth. You had a point to prove and removed material from your show which made the narrative balanced. “Distraught, confused moms against important, well-spoken calm doctors” was your narrative with a deep sure voice to, literally, narrate the entire artifice.

You should be ashamed of yourself, Kate. You knew what you put on the air was slanted and you cheated the viewers out of an opportunity for education and information. You cheated me out of hours of time, betrayed my trust and then you wasted an hour of PBS airtime. Shame on you.

The way vaccines are manufactured and administered right now in 2010 makes vaccines and their ingredients part of the group of toxins which have led to a huge increase in childhood diseases including autism. Your show made parents’ decisions harder and did nothing except regurgitate old news.

Parents and children deserve far better from PBS.

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