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The Big List of S*%# Linked to Autism: Winter Conception

A new one for the “might cause Autism” list … Winter Conception.

A new study has revealed that those conceived in winter have up to a 16 per cent greater risk of autism than those conceived in July.

The Big List of S*%# Linked to Autism

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Autism Haunts Dreams

Can’t an autism dad get a break even when unconscious enjoying some rapid eye movements?  The dreams I remember when I woke up this morning …

  1. Being at a relatives house who in the dream had huge collection of ceramic figurines on shelves that covered the whole house.  Some were of my daughter’s favorite things, like Shrek and Mickey Mouse.  I was rushing around trying to keep her from destroying them.
  2. One about a group home.  That’s all I can remember which is probably good.
  3. Another in which I dreamed that I awoke to discover that we had accidently gone to bed and left all of the doors and windows to the house wide open.
If I am going to have to worry about the same stuff in my dreams that I worry about in my waking life, can’t Scarlett Johansson at least make a cameo or two?  Is that too much to ask?

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Sensory Friendly Movies: Good, Bad, or Both?

We are attending a Halloween costume party / sensory friendly movie (Monster’s Inc) tonight at a local special needs organization. I have mixed feelings about the sensory friendly movie. We spent a lot of effort getting our daughter to act appropriately at the real movies and the last sensory friendly movie event that we attended was an all out free for all. Kids running around everywhere, the lights left on, and the sound turned down. For my daughter, this means that she will most likely pat attention to anything BUT the movie. On the other hand, it is so much NOT like the regular movie atmosphere, that I don’t know that she will even equate it with going to a movie. It’s more like going to a party where the TV is on in the room.

With that said, I recognize that there are a lot of kids with autism who can never go to a regular movie, so this event is probably a blessing to them and their families.

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Apps for Autism segment on CBS 60 Minutes Tonight (Preview)

Preview: Apps for autism - 60 Minutes - CBS News

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Funding extended for Combating Autism Act

It looks like the bottleneck in the Senate was broken and the funding for the Combating Autism Act will flow.

WASHINGTON — The Senate sent President Barack Obama a bill Monday night to extend federal autism programs after Sen. Bob Menendez reached an agreement with a Republican senator who had been blocking the measure.

The passage of a three-year extension of the 2006 Combating Autism Act authorizes $231 million in funding each year for research, education and services.

More @ http://www.therepublic.com/view/story/CONGRESS-AUTISM_6156289/CONGRESS-AUTISM_6156289/

But is it enough?

Kim Stagliano is the mother of three daughters with autism and a member of the Combating Autism Act Reauthorization Coalition. She said the funding provided by the act isn’t used efficiently and she would have rather seen a shorter extension so that it could have been reworked and the money better spent.

“I can tell you that in the five years since CAA passed, we haven’t made an inch of progress in the battle, in large part because the NIH has become captured by a failed school of orthodox science in autism,” she toldThe Stir. “In these austere times, reauthorizing a broken bill for three years doesn’t make sense. Instead, a one-year extension would allow time to rebuild the act to better meet the needs of American families facing the daunting challenges of autism in terms of adulthood and life care, treatment, and prevention.”

More @ http://thestir.cafemom.com/toddler/126538/autism_research_funding_narrowly_saved

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Combating Autism: What the hell is wrong with Senators DeMint and Coburn Edition

Critical provisions of The Combating Autism Act expire September 30.  The current bill is a continuation of the Combating Autism Act that President George W. Bush signed into law in 2006 and was passed unanimously last week by the GOP controlled US House of Representative.  Think about that. There was not one person in the House who stood in opposition to the bill!  None.

The bill was then unanimously voted out of the Senate  Health, Education, Labor and Pensions Committee on September 7, 2011.

Fast forward to this week, where two GOP senators are blocking passage.  Those senators are Sens. Jim DeMint, R-S.C., and Tom Coburn, R-Okla.

Autism funding is already pocket change compared to pediatric AIDS, cancer and childhood diabetes each, despite the fact that autism affects more children than those COMBINED.   That didn’t stop Senator DeMint from stating,

“But there are many, many diseases that children and people throughout our country face, and we have put experts in place to determine where we can spend the money that we allocate for research, and we need to leave that to the experts.” *

Coburn tried saying that the NIH doesn’t want reauthorization, which does not remotely look to be the case.

Smith went to the Senate to plead with his fellow Republicans, to no avail. He said Coburn said that some people at the National Institutes of Health don’t want the law, but Smith said the “quarterback” for autism programs testified at a recent congressional hearing about how important it would be.

“I don’t know anybody at NIH, unless they’re talking out of both sides of their mouth, who don’t want this,” Smith said. *

Have Senators DeMint and Coburn lost their f*&^ing minds or is there some other reason (a sane one) behind this move to block this bill?  To put things in perspective, the per year outlay of $231 million a year that is being sought here for autism equals about what we spend in Afghanistan every 36 hours!  We spend in 4.5 days in Afghanistan saving face, what we would spend in 3 years on autism research.

Contact Tom Coburn here!

Contact Jim DeMint here!

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Autism Highs and Lows, Lion King and Seizures

We went to see The Lion King 3D yesterday and it was an all around great family outing.  Going to the movies with a kid with autism is often a crap shoot.  Fine more times that not, but the occasional issue (like throwing Shrek action figure ten rows in front of us and scarring a nice family).  In any case, this time was great.  The movie was about the same as the other 20 or 30 times I’ve seen it, with the fringe benefit of a 3D headache.

The High of this good time was slammed back to earth with the Low of a seizure shortly after getting home.  It was 16 days since the last one and I knew that the odds were that we would have one soon.  In fact, according to my new attempts at seizure prediction, I knew that in the last 6 months, we have had a seizure within 16 days of the last one 90% of the time.

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New Study shows <<<...insert here...>>> linked to Autism

A new study out this week links having autism spectrum disorder to being an atheist. This seems to be the latest in a long line of similar autism studies. In this case, when they say “autism”, they mean Asperger’s Syndrome. A few other notable “autism linked to” studies that come to mind …

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Big Kid Stroller for Autism

We’re making a trip to Florida in the near future for a doctor visit and a quick trip to Walt Disney World.  We have always traveled with a stroller.  It makes getting through airport security MUCH easier.  However, she is getting a tad too big for the standard umbrella stroller.  I have gotten used to the dirty looks by judgmental people.  I am counting on karma paying them a visit at some point.  I noticed when searching for a big kid stroller that there is even a blog and a Facebook page where folks can go and practice being judgmental by mocking kids too big to be in strollers.  Granted, most of these kids at the WALK blog probably are too big for a stroller.  It is impossible to know what their circumstances are just from a picture.

Anyway, back to the issue at hand.  I am considering one of these bad boys …

Maclaren Major Positioning Push Chair

Developed especially for special-needs children, the Maclaren Major Positioning Push Chair meets the needs of parents for an everyday portable stroller to transport their child. The sturdy square-section, aluminum chassis with a metallic silver finish and 7″ (18cm) wheels withstand years of rugged service. Swivel-front wheels, square-grip handles, detachable footrest with three positions, brakes on each rear wheel, and a five-point safety harness are all standard features. Stroller easily folds to 46″ x 9 3/4″ x 8 1/4″ (117 x 25 x 21 cm) for transport and storage. Accommodates children up to 140 lbs. (63.5 kg).

Another option might be just getting a wheel chair from the airport.  I think she would probably be fine with this option.  She could play with iPad while waiting in the security line and the overly judgmental ”too big for a stroller” folks would be sufficiently satisfied that I am not a horrible lazy parent.

Related:

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Using Skype to Monitor your Child with Autism

As most of you know, leaving your kid with autism alone in another room, often leads to bad things, very bad things.  In our case, we have the standard behavior related reasons that supervision is needed plus worry over seizures.

We have been using laptops, iPads, and Skype to monitor our daughter from another part of the house.

To do this, you need:

  • WiFi - You could do this via wired ethernet connection and laptops/PCs, but it would be more difficult.  Wifi is great since it makes everything mobile.
  • Two internet connected devices (two laptops, two iPads (iPad 2 with cameras), or a mix of laptop and iPad.
  • Two Skype accounts
Basically, we initiate a Skype video call from one device to the other, place one where we want to monitor, and keep one with us.  If your child loves computers like mine does, you can probably train the kid to accept incoming Skype call and turn on the camera.  This setup works great because unlike a standard baby or other monitor, not only can you see the child, you can converse with the child.  I usually make sure any open browser is in windowed mode and I leave the Skype video to the side so she can see us.

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